Yep, i do have a facebook account! Facebook is for me the way stay in touch with my friends from all over the world. (Cockayne Syndrome family) It's nice to follow them and to share photo's with each other. I do have an other online friends network too, but that is the Dutch version of facebook. It's called Hyves.
Maybe we can meet on Facebook?! I've tried to find you, but without succes.
We're into bussy times. Almost to much to handle. Puk just had a tearduct surgery. A full tearduct reconstruction. She stayed 2 nights in hospital. But she's doing very fine now.
We're going since 4 months with Lex to a psychologist. We need proffesional help, because the behaviour problems, witch he has since birth, are getting more and more difficult to control. (as far as we can say that we ever had them under control) He's suspected from a serious autism disorder. Something we already knew since he was a toddler. But we always could handle it without professional help. But yesterday became 9 yrs old now and he is getting more violent and cheeky. The care for Puk the last 3,5 yrs. made it more difficult to go for help. But it wouldn't be fair to abstain Lex from help that he and we need, because of Puk. Soooo... But yes it's hard to give them both what htey need. But we will work it out, as we always do.
Hope you're all fine! speak soon, on facebook maybe??
Welcome All! General info and discussion about my Daughter who was undiagnosed until age 4.5 then became a member of a very exclusive club: Pierpont Syndrome.
1 comment:
Yep, i do have a facebook account!
Facebook is for me the way stay in touch with my friends from all over the world. (Cockayne Syndrome family) It's nice to follow them and to share photo's with each other.
I do have an other online friends network too, but that is the Dutch version of facebook. It's called Hyves.
Maybe we can meet on Facebook?!
I've tried to find you, but without succes.
We're into bussy times. Almost to much to handle. Puk just had a tearduct surgery. A full tearduct reconstruction. She stayed 2 nights in hospital. But she's doing very fine now.
We're going since 4 months with Lex to a psychologist. We need proffesional help, because the behaviour problems, witch he has since birth, are getting more and more difficult to control. (as far as we can say that we ever had them under control) He's suspected from a serious autism disorder. Something we already knew since he was a toddler. But we always could handle it without professional help. But yesterday became 9 yrs old now and he is getting more violent and cheeky.
The care for Puk the last 3,5 yrs. made it more difficult to go for help. But it wouldn't be fair to abstain Lex from help that he and we need, because of Puk. Soooo...
But yes it's hard to give them both what htey need. But we will work it out, as we always do.
Hope you're all fine!
speak soon, on facebook maybe??
Lots of love to you all!!!!!
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