Welcome Friends

My Miss Makenna was born Sept. 2003. "Multiple Congenital Anomalies"are words that marked that day, the next and the next more than, "Congratulations Mom and Dad!" did. As this blog develops I hope to share with other parents what my family has been experiencing for the last four and one half years, raising a child with Pierpont Syndrome. It is relatively new Syndrome. Very new to me! (6 months since diagnosis). Very few of the families who have children diagnosed with Pierpont personally know of more than one or two other cases. There is NO information on the Internet about it. With the diagnosis comes a sense of isolation that I am unable to describe. I hope I can change that for families with wonderfully fun, happy little humans, that happen to be one out of millions.